Friday, July 16, 2010

A Family Unitied

Apparently Mom's current cancer is the cause of her physical deterioration over the last 3 years. It is not uncommon for breast cancer to return years later in the nervous system. Yet when that happens life expectancy is usually less than 6 months when treated, less than 5 weeks when not. So Mom's case is very unusual. The cancer apparently has "encrusted" itself on her spinal cord and was not floating around in the fluid. This is why the 4 lumbar punctures of 2 years ago never found it. They seemed sure it was cancer, it acted like cancer, but they couldn't find it. They finally determined that it must be some unknown virus that swept through her body.


Since this cancer is not acting typical, the typical time lines are not applicable. But the oncologist is sure that she won't last the year. If she continues to eat such small meals, it will be just a couple of months.


So we are getting ready. My father and siblings met via conference call last Sunday. I LOVE my siblings. They really are the best and I miss them. Even through the seriousness of the topic, the lightheartedness and humor was shining through.


Sam is flying in tomorrow with his family. We will have a chance to see him and Emily and meet my niece Abby tomorrow at the Volkman family reunion. Can't wait!!

Saturday, July 10, 2010

pictures


just a few days old








Self portrait


If you can get past the TEETH...


The kid's a looker



Sometimes she lets me put her hair up



So handsome


can you tell how devious?













My Mom

YAY, we finally are getting some answers! After more than three years of experiencing Mom's declining health, we are finally getting some real diagnoses. The hard part is that the news is not good. They found cancer. We do not yet know what kind. Hopefully we will find out on Monday. Mom had breast cancer 16 years ago and decided then that if cancer returned she would not want treatment. This cancer has attached itself to the nervous system, likely as a result of that massive nervous system infection that brought her to rely on the wheelchair three years ago. At least it isn't dementia. But we are loosing her. I'll keep you informed.